This deeply intimate documentary follows Emma Fogarty, a remarkable woman living with dystrophic epidermolysis bullosa, an extremely rare genetic condition that makes her skin as fragile as butterfly wings. At 36, Emma has defied all medical expectations by becoming the oldest person in Ireland to survive with this devastating disorder, which causes her skin to blister and tear at the slightest touch.

Director Rachel Fleit crafts an unflinchingly honest portrait of Emma's daily reality, capturing both the extraordinary physical challenges she faces and her indomitable spirit. The film explores Emma's relationship with her devoted mother, her dreams of independence, and her determination to live life on her own terms despite the constant threat of pain and injury. Colin Farrell, who serves as both producer and narrator, lends his voice to Emma's story with remarkable sensitivity and compassion.

Through Emma's journey, the documentary examines themes of resilience, family bonds, and what it truly means to embrace life when every moment is precious and precarious. The film presents an intimate meditation on courage and the human capacity to find joy and purpose even in the face of seemingly insurmountable odds, offering viewers a profound and transformative viewing experience.